An ERN (European Reference Network) ReCONNET Survey on awareness and knowledge of Clinical Practice Guidelines in rare and complex connective tissue disorders will be open until 10th February 2018.
These surveys provide vital information to the doctors and researchers setting guidelines for our care.
This survey can be filled in by patients or their families or caregivers. It applies to people with lupus but also those with rare or complex connective tissue disorders.
For more information about the ERN and the survey, please click here.