December board meeting

The LUPUS EUROPE board met in Milan for a fruitful week-end of meetings from 9-11th of December.

Several topics were on the agenda, including the very first preparations for the 2017 convention and mapping out the very busy 2017 calendar of events and work sessions. As well as the board (minus the wonderful Anne who was unfortunately unable to attend), Augusta Canzona, Lucia Di Bernado and Daniela Rava from Lupus Italy were on hand to help out with convention details.

From left to right, Augusta Canzona, Kirsi Myllys, Kirsten Lerstrom, Alain Cornet, Katharine Wheeler, Lucia Di Bernardo, Sara Badreh and Jeanette Andersen (front).

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Swedish Lupus group 2016 convention report

The Swedish Lupus group have sent us their report of the LUPUS EUROPE convention in Würzburg. It’s in Swedish – of course – but we thought it would be nice to share with you!

Have you made a convention report for your group’s newsletter or magazine? If so we’d love to share it here too 🙂

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For a PDF version of the report swedish-convention-report

European Parliament Interest group…

Today, Tuesday, December 6th Chair Kirsten Lerstrøm, LUPUS EUROPE, was invited to address the European Parliament Interest Group on Rheumatic and Muscoskeletal Diseases (RMDs) on Patients’ Perspectives on Improving Access to Care and Therapies for People with Rare RMDs at the meeting of “Policy Issues and Challenges in the Treatment and Care of Rare Diseases”.

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