Patient Solidarity Day – IAPO

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The 3rd of December is Patient Solidarity Day.

Support IAPO’s (International Alliance of Patient Organisations) Thunderclap through your social media accounts by clicking here: http://thndr.me/7mJakT

For more information on what a Thunderclap is and how to use it, click here.

The aim is to reach at least 100 supporters on Thunderclap, otherwise the message won’t be shared on 3 December. Please share this link as widely as possible through your networks so we can achieve the goal.

There are plenty of other things you can do to spread awareness of Patient Solidarity Day. Please visit IAPO’s  website for other ideas and resources (in both English and Spanish) to help you plan your activities for, and in the run-up to, 3 December. Please do take part in any way you can – it will make a big difference having your involvement.

Questionnaire on pregnancy in Lupus & other rheumatic diseases: prolongation

pwird.com
Before the end of the year, we are sending our last reminder! We would like to thank you for your participation and kindly ask, for one last time, to inform your members of our questionnaire.
The study is going very well so far, we have had almost 400 responses from 26 different countries. The greater the participation, the more information we will have that could possibly be representative of each country; thus, we would like to extend our study until December 15th. Our aim is to investigate the pregnancy experience that women with rheumatic diseases go through, in order to voice their concerns, reveal problems they’ve faced and identify areas of improvement of the health system, and we are close to finalising our efforts. Please share our questionnaire through email, Facebook, website-link or other way of your preference.
Attached please find the links to our questionnaires:
We deeply appreciate your support!
Kind regards,
Ilianna Armata 3rd yr medical student
J. Joseph Associate Professor
St George’s University of London programme at the University of Nicosia Medical School, Cyprus.

Sunscreens survey deadline extended

The deadline for the European survey on sunscreen application in patients with lupus erythematosus (SmiLE-Survey) has been extended until November 15, 2016.
You can reach the survey at the following link http://www.euscle.org/survey. Please feel free to share in your own networks.

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New York Marathon – Andreas

We are nearly there, Andreas Panteli will be running for LUPUS EUROPE in the New York Marathon on 6th November.

Experience the World’s Biggest Marathon

You can catch the excitement of the TCS New York City Marathon from anywhere on the planet. In the New York tri-state area, the race broadcasts live on WABC-TV, Channel 7, from 9:00 a.m. to 2:00 p.m. ET. Pre-race coverage starts at 7:00 a.m. The race will also be live on abc7ny.com and via the ABC app. Outside of the tri-state area, live coverage runs from 9:00 a.m. to 12:30 p.m. ET on ESPN2 and via WatchESPN. Additionally, the race will be available in Spanish via ESPN Deportes+. Find out more ways to watch. Download the TCS New York City Marathon Mobile App Powered by Tata Consultancy Services to live-track up to 20 runners, check out the course map, and see the full schedule of race-week events.

For a pre-taster, here are some photos from the Pavillion.

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