The European Patients’ Forum survey on Access to healthcare will be closing on 31st October. They still need your responses. The survey is very quick to fill out and your replies are very important. Thanks a lot for supporting EPF and their members (including LUPUS EUROPE) by taking this survey. You can find more information and a link to the questionnaire here.
There are just under two weeks to go before LUPUS EUROPE holds its annual convention. This year we will be in Würzburg, Germany and also celebrating the 30th anniversary of one of our members, Lupus Germany.
We are looking forward to an inspiring convention, with lots of things to share. See you there!
The European Society of Cutaneous Lupus Erythematosus e.V. (EUSCLE e.V.) has set up a European survey on sunscreen application in patients with lupus erythematosus. LUPUS EUROPE has been closely involved in this important project.
The aim of the observational study “Sunscreens in Patients with Lupus Erythematosus (SmiLE)” is to investigate the type of sunscreen applied by patients with lupus erythematosus and efficacy in daily life. This project was winner in the category “Leadership Community” of the Galderma SKIN PACT Award 2015. Detailed information on the study, its purpose and background are provided here: http://www.galdermaskinpact.org/winners/sunscreen/.
An online questionnaire for patients has been translated into 20 European languages. Patients with any type of systemic lupus can fill out the survey. You can go to the survey at this link and participate in this important project:
Please share the survey link to any lupus patients you know. The survey will be open until end of October 2016.