Attending the annual Eular PARE conference

We are currently at the Eular PARE congress in Dublin and delighted to report that our World Lupus Day poster has been very well received.

Here are some of the comments, among many:

“Very evocative”, “A really strong message”, “It really talks to me of control, not a question of being ‘friends’ with the wolf but of MY control of the disease”, “A positive message”, “The text is so well chosen, just right and to the point”… and many more – oh and people LOVE the colours!

More information on Eular PARE conference here

LUPUS EUROPE needs YOU!

If you are a member of one of LUPUS EUROPE’s member organisations and are interested in getting more involved as a patient advocate – spreading awareness, attending events, working on specific projects… we would love to hear from you. Even if you can only offer a little of your time, your contribution could make a huge difference!
If you have some time and skills to spare, please get in touch with the Lupus Europe secretariat at secretariat@lupus-europe.org
Augusta & Francesca

Augusta & Francesca

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Before becoming a trustee, Katharine had already volunteered to attend key events.

EUPATI Patients’ academy

Interview with Jan Geisler, director of EUPATI, on the Patients’ Academy. He answers questions such as: “What is the goal of EUPATI?” “Why did you feel it was necessary to create such an academy?” “What is the profile of the students enrolled in the EUPATI course?” “What will they (the students) learn?” To view the video please click here.

Patient Advocates (starring Nuria)

We’re delighted to share a really great video interview of three patient advocates telling us more about why they get involved. The video was made during the Eyeforpharma event in Barcelona  and stars our very own Nuria! To view the video please click here.

World Lupus Day sees first French lupus-only conference!

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The 10th and 11th of May 2015, the Immunopathology and Medicinal Chemistry laboratory of the CNRS and the University of Strasbourg, Faculty of Medicine will organize the first French conference dedicated exclusively to Lupus.

Held in Strasbourg, France, the conference registration is free for patients, who just need to sign-up.

The message from the organizers, professors Sylviane Muller (Director of the CNRS Immunopathology and Medicinal Chemistry laboratory) & Jean Sibilia (Dean of the Faculty of Medicine, University of Strasbourg), is,

“At present, there is no specific treatment for LED. Immunosuppressive and anti-inflammatory type drugs are generally used to alleviate symptoms and relieve pain. Note however that today new therapeutic approaches are proposed, more specific and hence generating fewer side effects. We are betting that these new approaches will significantly improve the quality of life of patients.

Doctors, researchers, patient associations and patients, this day is dedicated to you!”

For more information, the conference web site: http://jmls2015.sciencesconf.org/